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Photo by Layna Hendrich of PhotographyLayn

Monday, March 10, 2014

Being a Wheeling Traveler

I just returned home from a two-week trip to Ohio and Indiana. I will be blogging more about my journey and speaking events in a later post, but the visit reminded me that I had promised to share some of my experiences traveling in a wheelchair. I have done a lot of traveling since my accident, and for the most past, it has always been a pleasant adventure. Unfortunately, when it does go bad, it usually goes really bad. Here are some of the things I have learned along the way to keep traveling and vacationing as accessible and enjoyable as possible.

Airplanes:

Two of the best things to remember when traveling are preparation and communication. This is never more true than when you fly. When you are in a wheelchair, the airline will want to put you on the plane first, either using an aisle chair if you are able to transfer, or by having your aide carry you on to the plane. This allows you to get settled before any other passengers board. I call ahead to let the airline know I am coming, and to let them know that I will need an aisle chair. Your chair goes underneath the plane, and if all goes according to plan, it will be waiting for you at your destination.

Although you are the first to board, you will be the last to deplane. Keep this in mind when dealing with connections. Make sure and give yourself time to wait for the ever elusive aisle chair, make your transfers, use the restroom, and make it to your next gate early so they can load you first. I like to have a 2-hour layover if possible. This allows me plenty of time to do what I need to do in between flights without feeling rushed or worried I will miss my flight.

Here are some quick tips when flying with a wheelchair:
  • Be in touch with the airline's accessibility department. I always travel with United if possible. I have had great success and satisfaction with them, and I have their disability services department number saved in my phone contacts. I always deal with them directly when I fly, and we love their rewards program through their credit card.
  • Be prepared for a full pat-down when going through airport security. They will offer you a private screening if this is embarrassing for you. They will also test your chair as well as thoroughly inspect it, including any bags attached to you chair. I have had instances where this was a very quick process, and other times where I had to remove my shoes, lean from side to side so they could check my cushion, and sit patiently as they scrutinized every nut and bolt on my chair, including crawling underneath it. I actually appreciate the attention to detail when dealing with safety and security, so this has never bothered me,
  • Research the airports you will be using. Some smaller airports will require you to use elevators in strange and sometimes hidden locations in order to reach the tarmac to go up the ramp to board the plane. Larger airports may require you to go from one concourse to another that is seemingly miles away- another good reason to have plenty of time between flights. Be prepared to use tramways in some cases. Avoid the moving electric sidewalks if you are not used to them- it's an easy way to flip a manual chair, especially if you are carrying bags that will alter your center of gravity. Don't ask me how I know this.
  • Communicate with the airline personnel, especially the ones helping you on and off of the plane. They are usually nervous and will do much better if you make your needs and expectations very clear. Remind everyone you see about an aisle chair, if you require one. These things tend to disappear in airports, and I am often surprised at  how long I wait on a plane by myself after all of the other passengers have gone waiting for an aisle chair to appear. 
  • I take my cushion on to the plane with me. It's better for your backside for longer flights. It will put you higher in the seat, so watch your seat belt and the armrests to ensure they don't dig in to your legs. And make sure your seat belt is out from under your cushion before you sit on it.
  • Calling ahead also allows the airline to assign you a good seat, preferably in the bulkhead row, which has more legroom and more space for transferring. Just make sure the armrests go up if you will be transferring. I prefer the window seat so that people don't have to crawl over me, so I put all the armrests up and slide over to the window. Also, the bulkhead doesn't always allow for under-seat storage of your carry-on items, so make sure you remove what you need before you let the flight attendant put things in the over-head compartments.
  • On shorter flights, I don't use the restrooms on the planes. On longer flights, you can either use a leg bag, or ask that they leave an aisle chair on board the plane so that you can be taken to the restroom in-flight. I have only done this once, on a 9-hour flight to Maui, and it was comical at best. The restrooms are not accessible, but if you are traveling with an aide or companion, they can probably help you make it work. Look for the family bathrooms in the airports.They are very spacious and accessible.
  • As far as luggage goes, this will depend on each individual person and their abilities and comfort level. I have found what bags will strap to my chair or that I can handle when traveling alone. In most instances, I have someone drop me at the airport and someone pick me up to help me with luggage. I have done this all independently, and while I made it work, it was tough. Wrestling heavy luggage onto those luggage carts and then pushing the whole mess while in a wheelchair is not on my list of fun things to do, but it is possible.
  • Make sure they put a tag on your personal wheelchair and give you the gate-check tag. Be specific about how your chair is to be broken down or left as-is during storage under the plane, especially if you use a power chair. Explain any and all controls, battery switches, moveable parts, etc. 
Buses/Taxis:

I have used buses as shuttles to get to a hotel, as well as larger buses as the primary means of travel. Again, calling ahead is key. Make sure they know you will need a bus with a lift. You would think this would be an obvious need, but don't assume anything.

Taxis are different from city to city. I am able to transfer into a regular taxi and break down my chair, but I prefer the wheel-in taxis where available. When I visit NYC to see my brother and sister, we use the WOW Taxi app to keep track of accessible taxis in the area.

Most cities have accessible public transportation of some kind, but again, do your research on the type of vehicle, accessible stops, access, parking, etc. You can never over-research accessibility, especially on a first-time visit to a city that is not familiar to you.

Rental Cars:

Most major rental car companies have a disability services department that can help you make your reservation. They can tell you what vehicle models are available with hand controls, spinner steering knobs, and other adaptive equipment. If they don't have vans with ramps, they should be able to point you in the right direction of a company that rents out other accessible vehicles, depending on your needs.

Cruise Ships:

I love taking cruises. To me, it is one of the most accessible ways to vacation. I could do an entire blog post on cruises, but I won't. Bottom line- call their disability services department and make sure you get an accessible room on the ship. It will be your safety net to return to when you are in a port that is not exactly ADA compliant.

Hotels:

You would think that most hotels would have the accessibility thing figured out by now, but you would be surprised at how many "accessible" rooms I have booked that I had to use a rolling office chair in order to get in to the bathroom. When in doubt, ask for specific room dimensions and door widths. It sounds crazy, but sometimes it is the only way to ensure access.

Also, specifically request a shower chair, hand shower, or a roll-in shower if needed- every hotel will be different. And well before you take that first shower, make sure the shower head is either pointed where you need it, or pulled down far enough to where you can reach the hand shower portion. I can't tell you how many shower heads I have had to whack with a shampoo bottle or curling iron when I forgot to ask that it be adjusted. And don't pull too hard on the hoses of the hand showers that double as full shower heads. Those suckers are heavy and slippery, and drop from the sky like boulders.

This is in no way a complete guide to traveling in a wheelchair, but I hope it sheds some light on a sometimes scary endeavor. I love to travel, but I do try to make it easier on myself by doing the hard work ahead of time. As always, if you have any questions or comments, please feel free to leave them below, message me below, or email me at ashlee.lundvall@gmail.com.

I will be back next week with my first official product review, as well as an update on my last trip and my upcoming trip to the Abilities Expo in Atlanta. Exciting times ahead!

Saturday, February 15, 2014

Guest Blogger: Dianna Warren




The first thing that you notice about Dianna is her smile- it can literally light up an entire room! She was a volunteer at the pageant last summer, and she did an amazing job offering support and guidance throughout the week. I was totally out of my comfort zone and had no idea what to expect, and she made me feel so comfortable and confident as the week progressed.

Diana has been married for 35 years- what a testimony in the world today! Last fall, she won the Ms. Wheelchair USA Ohio pageant and will be representing her state in the upcoming national pageant in July. I know she is going to do a great job- she has already proven she is a great advocate for the disability community! Meet Dianna!

Dianna and her husband, Howard, after she won the Ms. Wheelchair USA Ohio pageant
  • Tell us a little about yourself?

My name is Dianna Warren, I am 53 years old. I will be 54 in May. I am from Canton, Ohio. I have one brother and one sister- I am the oldest. I graduated from McKinley High School in 1979, then I got married in August 1979. We dated for 3 years before we got married and now it is going on 35 years (time goes by fast)! I like working as a customer service representative, and I am currently looking for work. I’m a very determined individual. I also have a very positive attitude which I speak a lot about, as well as having a lot of faith.


  • Tell us about your disability?

 I was diagnosed with Spinal Muscular Atrophy at the age of six. It is a form of Muscular Dystrophy. It’s a genetic disorder affecting the motor neurons where muscles lack the SMN protein, thus causing a poor connection between my nerves and muscles. My muscles don’t receive nerve signals as strong as they should and they don’t get used to their full potential, causing them to atrophy.


  • What is your platform/motto in life?

My platform is on Myths and Facts about People with Disabilities, I never really thought of myself as a stereotype. In fact, I think of myself as a pretty typical American woman, with a wonderful family and many opportunities. Everyone at one time or another might find themselves fighting a stereotype and people with disabilities are no exception. Many stereotypical barriers begin with attitudes. Attitudes are often rooted in misinformation and misunderstanding about what it’s like to live with a disability. I believe people can help remove barriers and change attitudes by accepting people with disabilities as individuals, capable of the same needs and feelings as you. I believe I can make a difference in how the world views individuals with disabilities.


  • What are your favorite activities?

I absolutely enjoy bowling. I have been a secretary / treasurer for a bowling league for people with different disabilities for 27 years. I am proud to say that I carry a 150 average. I enjoy camping- it is relaxing and a time to spend with family and friends while enjoying a good camp fire. I love to play Bingo! I also enjoy traveling, especially where it is warm because I love the beach and swimming. I love getting out and meeting people and different groups and speaking and sharing my life and experiences with others- I love to inspire others. I also like country music and going to concerts. I enjoy volunteering and doing fundraising. 


  • What is something we might not know about you?

Let’s see… I was inducted into the Canton Women’s Hall of Fame for all of my accomplishments and community services. I did some modeling for a clothing store. I belong to the Ohio wheelchair sports which I won gold medals in bowling, power wheelchair racing and obstacle course. I have won a lot of awards.  And I like to gamble (for fun).


  • What are your future plans?

To get a part time job from my home and continue to inspire people. I am always thinking of new adventures.


  • What is the biggest obstacle you have overcome?

I don’t feel like I have had to overcome anything because I have lived all my life with a disability. You know how to get over the barriers, and with a positive attitude and a wonderful husband and family, you can overcome just about everything. 


  • What is the best advice you would give to someone with a recent injury/diagnosis?

Don’t give up! Everyone has a purpose in life. You will have good days and bad days, but everyone does- you have to believe in yourself and have faith. The most important thing is to have a positive attitude- that is what will get you through everything in life.


  • Anything else you would like to share?

I am so honored to have won the title of Ms. Wheelchair Ohio and to be able to represent my state for individuals with disabilities. I am so thankful for the Ms. Wheelchair USA Pageant- it has helped me so much with feeling glamorous and building up more and more confidence about myself. It is an opportunity to meet so many wonderful and inspiring women. I truly love having Ms. Wheelchair USA being part of my family!

Dianna was an amazing volunteer during the 2013 pageant. She will be competing for Ms. Wheelchair USA at the 2014 pageant in July!

Sunday, January 26, 2014

Guest Blogger: Jake Winlow


Even though I've only know Jake for a few years, I feel like I've known him forever. Both he and his parents are some of the most genuine, down-to-earth people I have ever met. Throw in the awesome beard (eat your heart out, Duck Dynasty!), and his love for the outdoors, and it's easy to see why I enjoy hanging out with Jake. He and his Dad, Charlie, have rigged up some pretty great equipment over the years to allow Jake to continue to enjoy accessible outdoor recreation, which just so happens to be my passion, so I am really excited to not only introduce you to my friend, but also to share with you some of the pictures he sent me of his awesome four-wheeler and his hunting set-up. Meet Jake!



Jake and his parents, Charlie & Pat


  • Tell us a little about yourself?

My name is Jacob Winlow.  I am 29 years old and I was born in Riverton, Wyoming.  Throughout my life I’ve lived in Alaska, North Dakota, and finally returned right back here to Wyoming.

  • Tell us about your disability?

I was involved in a single vehicle rollover accident near Williston, North Dakota on August, 8 2009.  During the accident my head hit the roof of the passenger compartment causing the C6 vertebra to slide on C7, “kinking” my spinal cord.

  • What is your platform/motto in life?

My motto in life, hmm that’s a tough one.  No one has ever asked me that.  I’m pretty certain of one thing though, I don’t have a platform in life.  That just sounds way too involved for me.  I guess my motto can best be summed up by the Arthur C. Clarke quote:  “The only way to discover the limits of the possible is to go beyond them into the impossible”.  I just try to always push myself a little harder or a little further whenever I do something.

  • What are your favorite activities?

My favorite activities include four wheeling, hunting, camping, watching hockey, and just relaxing in front of the computer.  I went hunting for both deer and elk in the fall of 2013.  The elk hunt was in the Hyattville, Wyoming area and was made possible by the Wyoming Disabled Hunters.  The deer hunt took place on a neighbor’s farm near my house.  

Sweet ride!


Jake elk hunting in Hyattville, Wyoming
 
  • What is something we might not know about you?

During my time in Alaska I was an avid archer.  I took first place statewide in my age group in multiple competitions throughout the last few years I lived there.

  • What are your future plans?

My future plans are pretty simple at this point.  I plan to stay in Wyoming, try to stay healthy and continue doing the things I enjoy.  I’m always working to improve upon my physical limitations whether it be with adaptive equipment or exercise and physical therapy.

  • What is the biggest obstacle you have overcome?

The biggest obstacle I have had to overcome is without a doubt my loss of independence and the fact that I must now rely on others to help me with things I once did on my own.  I work hard to try to become as independent as possible and will continue to do so, but I realize there are many things I simply can not do without assistance.

  • What is the best advice you would give to someone with a recent injury/diagnosis?

I know the phrase is probably over used in these type of situations, but in all honesty my best advice is, “It gets better.”  I know I got tired of hearing it sometimes after my accident, but when I look back on those days it is certainly true.

  • Anything else you would like to share?

No, I think that’s about it.  Thank you, Ashlee, for the opportunity to be a guest blogger.  


P.S.- It's Jake's birthday on the 29th. Happy early birthday, Jake!!! 

Sunday, January 12, 2014

Guest Blogger: Jen Onsum

As promised, I will be opening my site to several guest bloggers over the next few weeks. The first is my friend, Jen Onsum. I met Jen at the Ms. Wheelchair USA pageant last July where she represented her state as Ms. Wheelchair Minnesota USA. She will be representing Minnesota again this year, as she was recently named Ms. Wheelchair Minnesota USA 2013-2014! Congrats to Jen!

I love Jen for so many reasons, but mostly because she is a tomboy like me! She loves to be girly and glamorous while roughing up the boys playing Power Hockey. And she has the most gorgeous hair I've ever seen- Addison thinks she is Rapunzel! Jen has made a huge difference in the lives of people with disabilities, and she will continue to do so in the future. Meet Jen!

Visit Jen's Facebook page here.

  • Tell us a little about yourself?

Let’s see… well, I’m 32-years-old (fastly approaching 33; which happens to be my favorite number, so maybe that means it’s going to be a super fantastic year!). I have two older brothers, who taught me to be tough and probably helped me developed my witty, sarcastic side. I have two precious furbabies named Gizmo and Daisy. I also have a Beta fish named Ellen DeGeneres. I’ve worked since I was 16-years-old. I have a Bachelor of Arts in Journalism with an emphasis on Public Relations and an Associates of Applied Science in Health Information Technology. I’m very much of a city girl, having lived in the Minneapolis suburbs my whole life. As long as I’m within 5-miles of a Target, I’m good. Despite my obviously girlie outward appearance and general personality (I love anything pink and/or sparkly!), I’m a very feisty, determined individual. I’m really good at holding my own when I need to (as Kellie Pickler sings, “There ain’t nothin’ wrong with woman that got a little backbone”). Once I set my sights on something, there’s no going back. I’m not easily defeated. 
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  •  Tell us about your disability?

I have Spinal Muscular Atrophy Type II and was diagnosed when I was 18-months old. My brother Steve also has this. It’s a genetic disorder affecting the motor neurons and where muscles lack the SMN protein, thus essentially causing a poor connection between my nerves and muscles. Because of this, my muscles don’t receive nerve signals as strong as they should and they don’t get used to their full potential, thus causing them to atrophy.
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  •  What is your platform?

My platform is “The Importance of Being Active.” I’m so, so passionate about this! Having been very active my entire life, I feel it’s so important to get out and do something. It can be anything… playing sports, traveling, going to school, getting a job, volunteering, going for a walk… whatever gets you out of the house! Finding something to do gives you a sense of purpose and a sense of belonging, which really helps you have a healthy frame of mind. It also shows society that people with disabilities are capable of being productive and contributing to society.
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  •  What are your favorite activities?

I have three favorite activities…

First and foremost, I absolutely love playing PowerHockey! In September I finished my 17th season with a Championship win. I’m a four-time Defender of the Year. It’s primarily a male-dominated sport, although I’ve been a little successful lately with recruiting other gals, and I love to be just as competitive and tough as they are. If it’s not rough and tough, it’s not fun and it’s not hockey!

I also absolutely love to travel! I’ve found exploring beautiful parts of the world and experiencing unique activities are very enriching. While it’s not necessarily easy for me, it’s very, very well worth the effort and going outside of your comfort zone. I wish I could travel more often. I’ve been to eight countries including Canada, Mexico, Puerto Rico, the Bahamas, St. Marten, St. Thomas, Belize and Honduras. I have a long list of places I still want to get to. 

Lastly… and if you had asked me this 14 years ago, I definitely would not have answered with this… but I looove getting out and speaking to people and groups! I’ve done it my whole life, but in the last few years I’ve really grown to love it. I feel it’s important for me to share my story, experiences and knowledge with others, to educate and inspire. And, as much as (I hope) I educate and inspire others, they educate and inspire me. 
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  •  What is something we might not know about you?

Hmmm… I’m one of the people new Target employees meet during training! Almost a year ago, Target cast me as one of, I believe five, models for new materials to train employees on the ADA. I was hired for both print and video; I’m on the cover of a brochure and appear in a video.
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  •  What are your future plans?

I have too many to even know where to begin! I tend to dream and think big! 
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  • What is the biggest obstacle you have overcome?

I have never been one to ever consider that I need to overcome anything. I don’t really consider obstacles, if you know what I mean. When you have lived your whole life with a disability and with a very positive, encouraging family, you don’t really see anything you need to overcome. Things like graduating high school, going to college, graduating college and getting a job are all things I was just going to do like my able-bodied peers. Sure, I have had some unique challenges and health struggles to work with, but I don’t feel that I’ve ever needed to “overcome” anything.
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  • What is the best advice you would give to someone with a recent injury/diagnosis?

Attitude is everything. Yes, you are going to have good days and some bad days, but so does everyone else. Being positive is power. When you think things are bad, remind yourself that things could always be worse and there are others out there who are having it far worse than you. With the right frame of mind and with the right attitude, anything is possible.
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  • Anything else you would like to share?

I love Starbucks? Just kidding. Ok, maybe not really. But, I just have to say that participating in Ms. Wheelchair USA has been an amazing and wonderful experience. I’ve met so many wonderful and inspiring people through it. I love my Ms. Wheelchair USA family!

Jen was the Second Runner Up at the pageant and also won the Press Award for her amazing video, which can be viewed here!


Sunday, January 5, 2014

Quick Update

Happy New Year! I hope everyone enjoyed their Christmas with family and friends. Our lives have been crazy busy, but I wanted to post a quick update about some of the exciting things that are happening.

You may remember my post about speaking at the TEDx event at Central Wyoming College in Riverton last October. The individual videos are up on YouTube, so if you would like to view my video, here is the link. I was honored to be a part of this conference, and I was pleased with how it all turned out. Enjoy!

I am currently scheduling speaking events for the next few months. Two local ones are:

  • Breakfast Series: Tuesday, January 14th, 7:30 a.m.-8:30 a.m. 
    • "All Things Are Possible"
    • Free Breakfast & Presentation 
    • NWC CTD - Park County Complex 
    • Register here 
  • Powell Valley Community Education: Tuesday, April 8th, 7:00 p.m.-8:30 p.m.
    • "Overcoming Obstacles & Challenges"
    • Free Presentation
    • NWC Fagerberg Building, Room 70
    • Register here
Here is the catalog for PVCE- another great photo credit for Layna Hendrich of PhotographyLayn!



As promised, I will be sharing my site with some of my friends as guest bloggers starting this week. Stay tuned for more events and information as well!